12.30-1.30pm, Wed 29th August 2018
Seminar Room 515, Level 5, 207 Bouverie Street, Carlton (*the venue might change, see details on the event flyer)
Professor Lynn Gillam, Centre for Health Equity, Melbourne School of Population & Global Health, The University of Melbourne; and Academic Director, Children’s Bioethics Centre, Royal Children’s Hospital Melbourne
Decision-making about health care for children is now being influenced by a number of significant social and technological factors. Information technology, the internet and social media give parents of sick children vastly increased access to information about new treatments, from a wide range of sources. And there are more new treatments out there, due to improved drug development processes and well-funded efforts at “personalised medicine”. These developments are at least part of what lies behind the increasingly common phenomenon of parents wanting to go beyond shared decision-making to be the primary decision-makers about what treatment their child will have, and seeking to pay for it themselves if not publicly subsidised. In this presentation, Lynn will discuss the ethical challenges that this growing phenomenon presents, with a particular focus on the equity issues.